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Table 1 Participant characteristics

From: “It's very important that you measure throughout that journey…”: patient perspectives towards quality-of-life data collection following haematopoietic cell transplant

Characteristic

Total n = 21

Median age (range) years

45 (26–71)

Time since transplant, n (%)

< 1 year

6 (29)

 1–5 years

7 (33)

 6–10 years

4 (19)

 11 + years

4 (19)

Gender, n (%)

 Male

9 (43)

 Female

12 (57)

Diagnosis, n (%)

 Acute Lymphoblastic Leukaemia

5 (24)

 Acute Myeloid Leukaemia

8 (38)

 Myeloma

3 (14)

 Myelodysplastic Syndrome

3 (14)

 Non-Hodgkins Lymphoma

1 (5)

 Multiple Cancers

1 (5)

Transplant, n (%)

 Autologous

2 (10)

 Match related

5 (24)

 Match unrelated

13 (62)

 Mis-match unrelated

1 (5)

Diversity & Inclusion, n (%)

 Live a distance from transplant centre

10 (48)

 Receive benefits

5 (24)

 Caring responsibilities

6 (29)

 Black and ethnic minority

3 (14)

Ethnicity, n (%)

 White British

14 (67)

 Asian

2 (10)

 Other white

3 (14)

 Other ethnicity

2 (10)