From: Psychosocial challenges among Asian adolescents and young adults with cancer: a scoping review
Author, year | Country | Study design | N | Control group (n) | Age at dx range in years | Age at study mean ± SD (range) in years | Follow up time | Treatment (%) | Outcomes | Assessments | Main results |
---|---|---|---|---|---|---|---|---|---|---|---|
Quantitative studies | |||||||||||
Chan, et al. [39], 2018 | Singapore | Prospective, longitudinal cohort | 65 | NA | 15–39 | 27.8 ± 6.7 | ‧ At diagnosis (T1) ‧ 1 month (T2) ‧ 6 months (T3) | NR | ‧ Problems with childcare ‧ Dealing with partner ‧ Dealing with children | The NCCN Distress Thermometer | ‧ Problems with childcare (9.2% at T1, 7.7% at T2, 4.6% at T3) ‧ Dealing with partner (9.2% at T1, 7.7% at T2, 1.5% at T3) ‧ Dealing with children (9.2% at T1, 3.1% at T2, 1.5% at T3) ‧ Concerns about family health (26.2% at T1, 10.8% at T2, 14.0% at T3) |
Okamura, et al. [45], 2021 | Japan | Cross-sectional | 206 | NA | NR (< 39) | 33.7 ± 4.3 (16–39) | ‧ NA | Chemotherapy (43.7) | ‧ Sexuality needs | ‧ SCNS-SF34 MSPSS | ‧ Expressed changes in sexual feelings (35.4%) |
Qualitative studies | |||||||||||
Ke, et al. [48], 2020 | Singapore | Qualitative interview | 23 | NA | 16–39 | 25 (18–39) | NA | NR | Family support | Focus group discussions | ‧ Multiple roles of AYAs in relation to their family members ‧ Most AYA patients had children as dependents or parents as caregivers |
Yoshida, et al. [50], 2022 | Japan | Qualitative interview | 24 | NA | 15–38 | 35.5 (24–43) | NA | NR | Romantic relationship and marriage | Semi-structured interview | Top three concerns about romantic relationship: ‧ Fertility and parenthood concerns (45.8%) ‧ Disclosure of cancer history to partners (37.5%) ‧ Recurrence, metastasis, and poor health (25.0%) |
Qiu, et al. [51], 2023 | China | Qualitative interview | 12 | NA | 24–40 | 32.8 ± 4.1 | NA | ‧ Surgery (100) ‧ Chemotherapy (66.7) ‧ Radiation (58.3) ‧ Endocrine therapy (75.0) ‧ Targeted therapy (25.0) ‧ Neoadjuvant chemotherapy (25.0) | Familial and peer support | Semi-structured interview | ‧ Highlighted the need for emotional support from family members and peers ‧ Expressed gratitude for the husband and maintenance of marriage bond |